I look forward to my trips to the allergy clinic because I learn stuff every time, mainly about my skin and eczema because the specialist I see is a Dermatologist at Oxford Churchill Hospital.
I am reminded I am not a hyperchondriac and that my allergies are real and my eczema is not that great. I need to learn to manage it better, to find a way to moisturise my skin, which seems to remain dry no matter how much oil and emollients I rub in, which is a lot, twice a day. I feel slippery as an eel but it never seems to improve my skin.
So, first things first, due to the long waiting lists and shortage of specialists the waiting room is likely to be quite busy. Make sure you’re early so you don’t miss your slot but we warned, things don’t always go as planned…
Delays mean we all chat to each other
Usually when I sit in the waiting room I’m like a true English woman, I read a book, play with my phone but rarely speak to any of the other patients beyond the pleasantries, a smile and a nod. Well you don’t want to be too nosy or come across like a crazy allergy stalker.
This time there were delays. Mammoth delays. You might think this would be a bad thing and it wasn’t great for the car park fees. I know I was annoyed at having to wait 1.5 hours longer than I was expecting to, but it meant that we all got chatting.
As the poor nurse worked her way around ascertaining who was the 10 o’clock and who the 10.15 and working out when they might be seen, I and the other 11am and 11.30’s were beginning to see we were way down the list already.
We ended up exchanging allergies, comparingsymptoms from allergy, asthma, eczema to food intolerances and how we coped. Many of us had asthma. Most of us had eczema too. But all of us had allergies. One lady was having an anaphylactic reaction every week which terrified me to the core. I am lucky that I manage to go for almost a year between anaphylactic reactions and I’m now at 1.5 years since my last one and hoping I never have another. It was actually really nice to sit and chat to each other about what our allergies were, how we coped, when we were diagnosed etc.
Once you get a referral, this is what you should expect:
The third degree
You will get asked a lot of questions about your history. What symptoms to get, when did your allergies begin, How often do you have reactions, what kind of reactions do you get? etc. etc. Your allergy history is documented and used to refer to at every appointment.
This is where keeping a detaild food and mood diary can really help, especially if your reactions are confusing and you’re not sure. Test can help to pinpoint allergens but you should also ask for a referral to a nutritinist of dietician if you are at all worried about what foods you should be substituting.
Skin prick tests
These are the first line of testing and they are nothing to frightened of. Depending on how many allergies need testing you will visit a nurse who will write with an endelible marker pen (be warned the ink will be on your skin for days… and take much scrubbing to remove) letters to denote each allergen to be tested.
First is the positive histamine test, this one should always react.
Next is the negative test which should not react.
Then the various allergens you’re being test for are lined up in little bottles, or if you have a sample of a food with you that can be tested too.
A blob of clear liquid is put on the skin, then a tiny little disposable needle is dipped into the allergen and then pricked very quickly into the blog of liquid next to the letter it refers to.
This time I was tested for Lupin, Kidney Beans, Tomato and Celery.
It’s worth remembering that this is not a competition. It’s not about the size or redness of the reaction at all. If you get anything that is showing significantly more than the negative comparison it will be measured and noted as an allergy.
I had a reaction to celery.
Slightly less to tomato but still markedly more raised and red than the negative test.
It itched like crazy and you have to try very hard not to scratch it but to leave it to react for about 10-15 minutes.
It was deemed no reaction for lupin but looking at this photo it does look slightly raised.
Nothing for kidney beans either but it was pointed out that we tested raw beans whereas my reaction had been to cooked beans so it may not be conclusive. I’m avoiding them anyway.
This probably follows how my allergies are; of the four the celery allergy is the worst, the tomato allergy just turns me into a raging eczema-ey red tomato faced madwoman. I didn’t know if would react to lupin as I’ve never ever eaten it and kidney beans cause a hayfever type reaction.
RAST blood test
To further confirm any allergies you might have a blood sample taken so it can sent away for testing for your particular allergen. You will usually then get a letter in the post with the results and your next appointment.
Prepare for your visit
If you are expecting to have tests done, don’t take any anti-histamines for a week.
Bring samples of any foods you want testing in case they don’t have in their stocks.
If you have questions, write them down and make sure you don’t forget to ask them and don’t be fobbed off.
I usually have difficult questions my poor allergy doctor and this time I didn’t always get the answer I was after.
Me: I’m interested immunotherapy for dust allergy as this one causes me the most hassle.
Dr: Because or your asthma you are not eligible for immunotherapy.
But hang on a minute? My dust allergy causes such crippling asthma when I go out, that’s why I need it… why can’t I have it? This answer did not impress me. Is that right? Really? Because you have a dust allergy you don’t qualify for dust allergy immunotherapy? Who does qualify then? People who aren’t really allergic?
The chances of me getting any kind of desensitation to the myriad food allergies I also have are pretty non existent.
I asked about needle length of adrenalin auto-injectors which has been bothering me for some time. Not a problem according to my Oxford specialist, though I left him some reading matter of recent studies suggesting this might always be the case.
I also asked about helminth therapy which was most definitely not recommended by my GP or my Oxford doctor. I get that they can’t support all these wacky treatments but it’s no wonder people go off on their own and try to fix themselves because the answer otherwise is pretty much – go and get on with life not travelling abroad, rarely eating out, only eating food you prepare yourself. Just put up with it.
Generally I’m very happy with my life. I’m a happy person but it makes me cross that my quality of life is not valued much at all. Anyone with anaphylaxis is just expected to cope with it, to live with the day-to-day worry of a serious reaction and to cope with all the less serious reactions to tiny traces that happen when let our guards down.
On the plus side, I have been prescribed Protopic, the magic bullet eczema wonder cream which I’ve heard so much about but never been able to get my hands on. Hopefully this might help me shift my nodular prurigo which is unsightly and painful.
So what’s your experience at the allergy clinic? Good, Bad? Indifferent?
Nathanael says
Hi I was one of the patients chatting to you in the waiting room. I like your blog it is very informative. When I saw Dr Read he was pleased with my progress and he agreed that my skin was in the best condition he had seen and discharged me. I am grateful to him for helping me identify moisturisers I can use . My skin is so sensitive that I can use no water-based creams. I am sensitive to many of the emollient ingredients particularly cetyl alcohol and cetryl alcohol ( even though the patch tests were negative) , the key was using pure oil based ointments like to 50 / 50
Ruth says
Hi Nathaniel, I remember you! Fantastic news on being discharged. I’m not far off I feel, but I am getting new allergies all the time which is not good. I too struggle with any creams. It’s emollients only for me, Epaderm but it’s so greasy. Might look into 50/50 as I haven’t tried this. My skin is just so dry, despite me moisturising ALL the time. It is getting better but I seem to have to eat a totally processed food free diet and no booze for maintain good skin. One error and I’m back at square one but it isn’t worth it really. Thanks for the comment – lovely to hear from but I might never see you again since you don’t have to go back!
Nathanael says
It’s interesting you can’t eat processed foods , me too its usually the preservatives that effect me and they are often also Salicylates. The problem I had in identifying Salicylates is the reaction is delayed , also it is cumulative . But by eliminating the high ones from my diet showed immediate benefits (herbs, spices, corn, tomato, chilli’s , peppers). For booze I’m Limited to gluten and sulphite free which leaves only rum , brandy and a few other spirits! Hope you get on top of your eczema.
RuthS says
Ah brandy and rum… now you’re talking. I can tolerate some wheat free beers (some naturally aren’t made with wheat) and vodka too. Wine is a bit of Russian Roullette! I’m keeping an eye on the chilli and peppers what with tomato allergy in mind. I react pretty badly to tomato as in really livid painful eczema which comes up in the night or the next day. Am determined to get on top of the eczema. I am not eczema. It is not my eczema. It is the eczema I am getting rid of, slowly… hopefully anyway.
Nathanael says
Furthermore I actually feel diet is More important than moisturising . Through elimination dieting I have found most of my food intolerances which include milk, eggs ,gluten and salicylates . Also GLA in the form of starflower, borage and evening primrose oil have a beneficial effect. For the first time in my life I am in control of my skin,
Ruth says
Oh yes, diet is just so important. Celery, tomato and dairy were causing my chronic eczema. So glad to have worked that out using a elimination diet but perhaps there are still some to pinpoint. I also stopped taking the evening primrose so I must buy some more. It is expensive but it really does help. Shame you can’t get that on prescription!
aruba says
hi i have some questions in my mind on 12 Sep 2015 i had my allergy skin prick test but before (39 hours) from my test i take Fexofenadine (antihistamine) tablet …is it interfere with my test??
and then after my test my skin swell on tested area but it was less then 3 mm red weal and no itching ..so is it positive or negative? doctor told me you are allergic to it but im not sure that i have allergy..