Skin on Fire is a documentary short film about Topical Steroid Addiction (TSA) and Topical Steroid Withdrawal Syndrome (TSWS). Through the heartbreaking, inspiring stories of diverse individuals who have suffered from TSWS, the film shows their suffering is undoubtedly from a legitimate condition, and the respected medical experts who weigh in offer viewers a better … [Read more...]
The system is broken, but change is coming
I'm feeling a bit broken today too. A day of listening and watching stuff about skin all day has been exhausting. This Morning shared advice that topical steroids very effective” they are & that they are not responsible for “causing any addictions.” That makes me sad. I listened to a podcast that really upset me. Parliamentary live was disappointing to hear nothing much … [Read more...]
My Protopic usage, tapering and withdrawal
We hear a lot about topical steroid withdrawal, but little about Protopic withdrawal so there is hardly any research existing about what happens if a person decides to stop using Protopic. This is my analysis of my own usage and withdrawal from Protopic so far... and counting... I can't even prove that the problems I'm having with excessive burning, inflammation, crusting … [Read more...]
Spoonie life – life with a chronic condition
I'd heard of this term before and knew it was something to do with being ill but never really understood what it meant. I'm not sure what prompted to me to google it the other night, but it's actually a really cool analogy that helps the healthy and well understand what others who are struggling with their health are having to contend with on a day to day … [Read more...]
Eczema treatment pathway in the UK
What are the current treatment pathways for adults with eczema? You might be surprised to know that there are actually no NICE guidelines for adults with eczema, so it's no surprise doctors and dermatologist simply follow the protocols, that have not changed for far too long. We all know are how outdated the current guidance can be and we need change. What is the future … [Read more...]