Today I went to visit my dermatologist for a skin check-up and he gaslit me from the minute I walked in to the moment I left. He refuses to accept that topical steroid withdrawal even exists, despite it being recognise by the MHRA and basically ignored everything I said, dismissed all my concerns and views, interrupted me and talked over me... What is gaslighting? From … [Read more...]
Protopic damages in the same way as topical steroids
This is Dominika's Protopic Withdrawal story. She became addicted first to Protopic, a topical immunosuppressant ointment. She had previously never used topical steroids. Her skin showed all the symptoms of TSW to Protopic but sadly doctors did not listen to her concerns and she has had a terrible time - going on to use Topical Steroids, as advised by her doctor, in an effort … [Read more...]
30 ways to stay cool for itchy skin
Staying cool is something I've been struggling with for some time now. I think partly because I'm now menopausal but also due to going through Topical Steroid Withdrawal. As the skin heals from deep inside the nerves get confused and send the wrong message sometimes. It's all learning to sweat normally, regulate temperature and become function again but there are ways to combat … [Read more...]
How running is healing my skin from TSW
Why do human beings need adventure? Why do we crave new experiences? Why do I push my boundaries and say yes to scary things? Why do I run? Running is hard! It's a challenge. It can feel like you're just really bad at it but it can also make you feel amazing and it's given me so much. This blog is inspired by fellow Chiltern Harrier Rik's blog about why he runs. Read Why … [Read more...]
Getting the most out of your dermatology appointment
Here are my 10 tips for getting the most out of your dermatology appointment, because I've been there. I've left crying, feeling angry, misunderstood and worthless. I want you to get the most out of your appointments, and over the years I've perfected the art. I think my derm is actually a little bit scared of me now, ever since at my last appointment I gave him a copy of my … [Read more...]