Why do human beings need adventure? Why do we crave new experiences? Why do I push my boundaries and say yes to scary things? Why do I run? Running is hard! It's a challenge. It can feel like you're just really bad at it but it can also make you feel amazing and it's given me so much. This blog is inspired by fellow Chiltern Harrier Rik's blog about why he runs. Read Why … [Read more...]
Getting the most out of your dermatology appointment
Here are my 10 tips for getting the most out of your dermatology appointment, because I've been there. I've left crying, feeling angry, misunderstood and worthless. I want you to get the most out of your appointments, and over the years I've perfected the art. I think my derm is actually a little bit scared of me now, ever since at my last appointment I gave him a copy of my … [Read more...]
Skin on Fire – TSW documentary reviewed
Skin on Fire is a documentary short film about Topical Steroid Addiction (TSA) and Topical Steroid Withdrawal Syndrome (TSWS). Through the heartbreaking, inspiring stories of diverse individuals who have suffered from TSWS, the film shows their suffering is undoubtedly from a legitimate condition, and the respected medical experts who weigh in offer viewers a better … [Read more...]
The system is broken, but change is coming
I'm feeling a bit broken today too. A day of listening and watching stuff about skin all day has been exhausting. This Morning shared advice that topical steroids very effective” they are & that they are not responsible for “causing any addictions.” That makes me sad. I listened to a podcast that really upset me. Parliamentary live was disappointing to hear nothing much … [Read more...]
My Protopic usage, tapering and withdrawal
We hear a lot about topical steroid withdrawal, but little about Protopic withdrawal so there is hardly any research existing about what happens if a person decides to stop using Protopic. This is my analysis of my own usage and withdrawal from Protopic so far... and counting... I can't even prove that the problems I'm having with excessive burning, inflammation, crusting … [Read more...]