I've been advocating, sharing, fundraising and talking about eczema and topical steroid withdrawal (TSW) now for many years, long before I started this blog, so I thought I'd write about how you can advocate, whether you have eczema, TSW or skin sensitives yourself or not. Eczema and Topical Steroid Withdrawal community - You don't have to be a blogger, speaker or sharing … [Read more...]
TSW is NOT a social media trend – TSW RANT!
Today I read an article in the Washington Post entitled, What is Topical Steroid Withdrawal? You might be thinking, fantastic! That's amazing coverage, but I'm left fuming at the journalists lack of research and general dismissive attitude towards people going through this. Here's why I hate this article, written by Tonya Russell - I've just tweeted here my blog response … [Read more...]
Government response to TSW petition for research
Thank you to everyone who signed the Change.org petition to push for funding and research into Topical Steroid Withdrawal. We needed to get 10,000 signatures to get a response from the government and they have responded. This is just the beginning... Here is the Government response in full: This response was given on 12 May 2022 Adverse reactions from topical steroid … [Read more...]
Long Covid, ME, TSW and diagnosis…
Long Covid is a recognised condition, one that doctors are learning to recognise, diagnose and support patients through. Yet it's a tricky condition to identify, so it's not easy to test for. Yet the guidelines for doctors encourage them to diagnose patients even if they have one symptom. This recent article by Michelle Berriedale-Johnson, Long Covid, gave me so much hope … [Read more...]
Topical Steroid Withdrawal Studies
What can we learn and what research has been done so far into topical steroid withdrawal? It would be easy to assume there had not been any studies made into this complex condition judging by the lack of medical support and diagnosis pathways. However as you can see, there have been quite a few, as far back as 1979! and even one in March this year! Look how many TSW … [Read more...]