Story, songs and animation helps children with eczema care for the ‘dragon’ in their skin Health experts from Birmingham City University and the University of Nottingham have teamed up with an author, illustrator and an East Midlands orchestra to produce a new book, animated film and songs to help children with eczema cope with the condition. The Dragon in My Skin is a … [Read more...]
Understanding the lived experience of eczema
On September 23, 2019, hundreds of members of the eczema community gathered in person and by live webcast to share their experiences at the More Than Skin Deep patient-focused drug development (PFDD) meeting held in Silver Spring, MD. This meeting and a web-based survey was the first initiative of its kind for eczema. Eczema is more than skin deep It was hosted by five … [Read more...]
How to love your skin…
It often seems impossible to even 'like' your skin when you have eczema, atopic dermatitis, psoriasis, rosacea or any other skin condition. And let's not even get stared on what Topical Steroid Withdrawal can do to your skin. However, learning to love my skin and to love yourself despite what it looks and feels like has been a game changer. Yes it can be very difficult … [Read more...]
Atopic dermatitis life hacks
I am so thrilled to have been involved with this brilliant initiative to raise awareness of atopic dermatitis, what it's like living with AD, and our life hacks for coping. This photo was actually taken in October 2018, nearly two years ago... It's a lovely memory of the day I met four lovely ladies who I have remained friends with to this day and I am so proud to call … [Read more...]
A day in the life of TSW
A day in the life of topical steroid withdrawal is exhausting, painful and relentless. Here's an insight into how it was and how much things have improved for me during the process. I am now 1 year and 5 months topical steroid free. Starting the day with very little sleep, sometimes 1-2 hours, sometimes none. Resting throughout the day has been almost the most important … [Read more...]