I am terrified that Topical Steroid Withdrawal is here to stay. That I'm going to be stuck like this, struggling to heal, in pain, with dysfunctional skin. Itching, shedding, flaking, cycling through flares, losing sleep and feeling like I'll never get better and heal. It's like a nightmare that keeps replaying. Not helped by my recent visit to the dermatologist who … [Read more...]
My Protopic usage, tapering and withdrawal
We hear a lot about topical steroid withdrawal, but little about Protopic withdrawal so there is hardly any research existing about what happens if a person decides to stop using Protopic. This is my analysis of my own usage and withdrawal from Protopic so far... and counting... I can't even prove that the problems I'm having with excessive burning, inflammation, crusting … [Read more...]
MHRA recognise Topical steroid withdrawal
This has been a long, long time coming but finally, all of us who reported our Topical Steroid Withdrawal (TSW) through the Yellow Card scheme can feel some relief that TSW is finally being taken seriously. A press release was released today, 15th September, during National Eczema Awareness Week to finally recognise that TSW is a thing! MHRA advises clinicians to be … [Read more...]
Help fund research for Topical Steroid Withdrawal
This is a REALLY quick blog to share a petition created by my lovely friend Sofia who is also going through topical steroid withdrawal (TSW). There is currently very little real scientific research going on and we need this urgently! If you don't know what TSW is, you can dive down a rabbit hole with my other blogs on the subject or read my new and growing TSW FAQ … [Read more...]
New Topical Steroid Withdrawal Frequently asked questions
I get asked the same questions over and over again, so here, finally, is a work in progress, my topical steroid withdrawal frequently asked questions. I will be keeping this updated as I get asked more questions and discover new exciting resources that might help you guys. These FAQs are for anyone: Who has eczema, uses topical steroid withdrawal and is worried and … [Read more...]