Today I read an article in the Washington Post entitled, What is Topical Steroid Withdrawal? You might be thinking, fantastic! That's amazing coverage, but I'm left fuming at the journalists lack of research and general dismissive attitude towards people going through this. Here's why I hate this article, written by Tonya Russell - I've just tweeted here my blog response … [Read more...]
Doubt is the worst symptom of Topical Steroid Withdrawal
I am terrified that Topical Steroid Withdrawal is here to stay. That I'm going to be stuck like this, struggling to heal, in pain, with dysfunctional skin. Itching, shedding, flaking, cycling through flares, losing sleep and feeling like I'll never get better and heal. It's like a nightmare that keeps replaying. Not helped by my recent visit to the dermatologist who … [Read more...]
MHRA recognise Topical steroid withdrawal
This has been a long, long time coming but finally, all of us who reported our Topical Steroid Withdrawal (TSW) through the Yellow Card scheme can feel some relief that TSW is finally being taken seriously. A press release was released today, 15th September, during National Eczema Awareness Week to finally recognise that TSW is a thing! MHRA advises clinicians to be … [Read more...]
Help fund research for Topical Steroid Withdrawal
This is a REALLY quick blog to share a petition created by my lovely friend Sofia who is also going through topical steroid withdrawal (TSW). There is currently very little real scientific research going on and we need this urgently! If you don't know what TSW is, you can dive down a rabbit hole with my other blogs on the subject or read my new and growing TSW FAQ … [Read more...]
Doctor agrees TSW is real!
I have just watched a really fascinating and interesting webinar hosted by talkhealth with George Moncrieff, entitled Atopic Dermatitis and the truth about topical steroids. He explained everything about topical steroids, how they work, when they were invented and how they should be used. He also went into detail explaining the skin layers, barriers and how … [Read more...]