This blog is about my tiny little life saver in disguise… it’s so tiny I can hold it in the palm of my hand and it weighs hardly anything at all. For such a small, unsuspecting item, it holds a lot power in my life.
What’s it like living with that fear?
When you have a life threatening medical condition you have to live with a level of fear and anxiety every day. This can be really difficult, exhausting and sometimes terrifying. I have been left completely helpless with anxiety, unable to breath, confused and lost and it’s horrible to go through that in public and not be able to explain to anyone what’s happening to you. I’m learning all the time and thankfully have fewer and fewer of these really debilitating attacks of anxiety. When you’re deep inside the hold of anxiety it’s easy to see it as bad…
But it is also a mechanism to keep us safe, to keep us alert, to keep us vigilant. It’s anxiety that makes me look for ways to help me stay in control.
I do a hundred tiny things every day automatically, to ensure my safety, and make sure I don’t come into contact with my allergens.
Things like carrying two adrenaline auto-injectors and all my medical paraphernalia with me at all times, having an up-to-date Action Plan, telling people about my allergies, showing them how to administer adrenaline, always phoning restaurants and carefully planning what is safe, helping prepare food at dinner parties, always carrying safe food with me just in case, spending ages scouring labels on food to check it’s safe, learning as much as I can, keeping regular asthma checkups, meditation, breathing exercises, being active, getting into nature, writing, the list is endless.
My little life saver in disguise…
But one of the really important things I do every day is wear my MedicAlert Activity Band. It’s like a tiny little life saver in disguise as a piece of cool jewellery. I also often get asked about it, so it’s a really clever ice breaker too. It’s a way of someone finding out why I wear it and also a way of me sharing my experiences and spreading awareness about why it’s important.
It gives me peace of mind. It helps calm my anxiety, because I know that if I’m wearing my MedicAlert Activity Band, and have an anaphylactic reaction, anyone treating me will be able to get all the information they need about me, my condition and the treatment I need. It’s just one piece of the preparation jigsaw that I do every day, I make sure I’m ready for any eventuality and have everything I need with me.
I’ve been really lucky so far and either still been able to communicate with paramedics when they’ve arrived, or I’ve been with friends who have been able to talk for me. In the last few years my reactions have become more severe, I go into shock pretty quickly, begin shaking all over, uncontrollably and pretty quickly lose control of the situation. I then don’t remember anything so I never even know what’s happened to me. It’s a frightening experience, to know you are helpless if this happens to you and you have to rely on the people around you acting fast, recognising what’s going on and giving you the treatment you need.
I’ve had a MedicAlert necklace and bracelet now for about 20 years. They have improved a lot over that time from a very functional product to a huge range of really beautiful jewellery and more practical sports and kids options. There are hundreds to choose from!
I would recommend anyone with a life threatening medical condition should wear one.
They give me a sense of being protected at times when I could be completely alone and vulnerable.
If you’re like me and allergic to nickel, you’ll need to look at the silver and fabric options. For me at the moment I am only able to wear my fabric Activity Band because my skin is so sore and often with broken skin. Most things can irritate my skin when it’s like this but my Activity Band feels comfy and doesn’t irritate me at all.
Not heard of MedicAlert?
If you haven’t heard of MedicAlert before, they have been providing support and assurance to people with life threatening health conditions since 1964. Customers wear a bracelet or necklace with their own personal MedicAlert ID and this means paramedics and medical professionals can get access to all their personal details, medical conditions and next of kin. This is especially important for illnesses which mean the person may not be able to communicate e.g diabetes, anaphylaxis, dementia, epilepsy and so many more. Check out the MedicAlert Website for more information.
Get 15% off any MedicAlert jewellery
It always amazes me how few people wear one of these because it’s a no brainer for me. Do you wear one? What’s stopping you? Why don’t you have one? Please share your thoughts. I’d love to delve deeper into this.
You may also be interested in the following
- The Trip Advisor for allergy people
- 10 tips for getting therapy for fear of anaphylaxis
- Allergy mistakes – Near Miss reporting
- Anxiety and post traumatic stress in adults at risk of anaphylaxis – please complete survey…
NB. In the interested of transparency, I do not get any benefit from this affiliate code, it is only you who gets 15% off. Enjoy the discount and please take advantage of this nudge to get extra peace of mind.