Thank you to everyone who signed the Change.org petition to push for funding and research into Topical Steroid Withdrawal. We needed to get 10,000 signatures to get a response from the government and they have responded. This is just the beginning... Here is the Government response in full: This response was given on 12 May 2022 Adverse reactions from topical steroid … [Read more...]
Long Covid, ME, TSW and diagnosis…
Long Covid is a recognised condition, one that doctors are learning to recognise, diagnose and support patients through. Yet it's a tricky condition to identify, so it's not easy to test for. Yet the guidelines for doctors encourage them to diagnose patients even if they have one symptom. This recent article by Michelle Berriedale-Johnson, Long Covid, gave me so much hope … [Read more...]
Topical Steroid Withdrawal Studies
What can we learn and what research has been done so far into topical steroid withdrawal? It would be easy to assume there had not been any studies made into this complex condition judging by the lack of medical support and diagnosis pathways. However as you can see, there have been quite a few, as far back as 1979! and even one in March this year! Quite a few Topical … [Read more...]
Reframing skin flares as healing
This applies to anyone going through topical steroid withdrawal really as skin flares can signify issues, triggers, allergies or stress that needs to be addressed. But if you're going through TSW the flares are probably often just skin your healing. It can feel like a constant attack, like it's never ending and the flares just keep coming. That's because they do, when … [Read more...]
Why won’t anyone talk about topical steroid withdrawal?
Why are people so scared to stand up and talk about topical steroid withdrawal? Why is it such a taboo subject? I know you love my rants and this one has been bubbling since last Friday, so I'm warning, I am about to let rip. Doctors, GPs and dermatologist mostly refuse to even acknowledge TSW even exists and this creates a lot of problems. I'd like to firstly thank … [Read more...]