I've been advocating, sharing, fundraising and talking about allergies, anaphylaxis and asthma now for years, long before I started this blog, so I thought I'd write about how you can advocate, whether you have allergies yourself or not. Allergy community - You don't have to be a blogger, speaker or sharing everything on social media to be an advocate. Allergy … [Read more...]
Skin on Fire – TSW documentary reviewed
Skin on Fire is a documentary short film about Topical Steroid Addiction (TSA) and Topical Steroid Withdrawal Syndrome (TSWS). Through the heartbreaking, inspiring stories of diverse individuals who have suffered from TSWS, the film shows their suffering is undoubtedly from a legitimate condition, and the respected medical experts who weigh in offer viewers a better … [Read more...]
The system is broken, but change is coming
I'm feeling a bit broken today too. A day of listening and watching stuff about skin all day has been exhausting. This Morning shared advice that topical steroids very effective” they are & that they are not responsible for “causing any addictions.” That makes me sad. I listened to a podcast that really upset me. Parliamentary live was disappointing to hear nothing much … [Read more...]
Anxiety and post traumatic stress in adults with and without food allergy
Do you experience anxiety and post traumatic stress disorder as a result of your life threatening allergies, anaphylaxis and past allergic reactions? It can be really debilitating trying to cope with something that could be catastrophic if you or someone else makes a mistake. Living on high alert is wearing, exhausting and can cause real anxiety problems. I know I'm not the … [Read more...]
My Protopic usage, tapering and withdrawal
We hear a lot about topical steroid withdrawal, but little about Protopic withdrawal so there is hardly any research existing about what happens if a person decides to stop using Protopic. This is my analysis of my own usage and withdrawal from Protopic so far... and counting... I can't even prove that the problems I'm having with excessive burning, inflammation, crusting … [Read more...]