Allergies, Anaphylaxis, Eczema, Topical Steroid Withdrawal & Asthma

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Write to your MP about allergies

17/08/2021 by Ruth Holroyd 6 Comments

I’ve just written a letter to my MP calling for an Allergy Tsar to represent the growing need for a burgeoning problem of allergies and anaphylaxis in the UK.

Because for whatever reason allergies are on the rise yet support is on the decrease.

We keep talking about it and trying to raise awareness but we still hear about unavoidable deaths from allergies, usually young adults or kids when mistakes are made when they’re eating out.

We need to do better.

These kids are living in fear. Many of them are hiding away at home and refusing to go out.

Too scared to take the risk of meeting the assassin that could be waiting for every single one of us who lives with allergies.

This applies to us adults too!

I shared the Natasha Foundation plea in a recent blog, We need an Allergy Tsar. Please visit this blog and sign the petition for change.

The need for an Allergy Tsar has never been greater!

Now they have a letter template that you can download to send to your local MP.

It feels like it’s not enough but it’s a start. We still have a long way to go.

I have been campaigning and lobbying parliament now for years and on every occasion we were seeing the same problems. Nothing changes.

  • Ten years pass and we are still having the same conversations. 20 years, the same…
  • Young families don’t get the help they need when their baby shows signs of eczema and allergies are not diagnosed until the baby has an anaphylactic reaction, despite early warning signs.
  • Restaurants still don’t always take allergies seriously.
  • A friend whose son has a nut allergy and has had an anaphylactic reaction has not been prescribed an adrenaline auto injector. Just told to avoid nuts. This is what happened to me some 35 years ago. There are NICE guidelines for this, it should not be getting brushed under the carpet. It’s serious.
  • Schools need to do better to ensure inclusion and education at early ages.
  • We all need to do better at education because I still regularly meet people who don’t’ know how or where to administer adrenaline, or who don’t realise it’s life threatening.
  • We all need to take responsibility for our own safety, be bold, be confident, demand the information we need and be strong enough to walk away if we don’t feel safe.

Together we can make a difference.

Click on the button below to download the template letter

Write a letter to your MP

Do you still meet people who don’t understand anaphylaxis?

Are you still explaining how to use adrenaline?

I don’t mind people asking, there is no such thing as a stupid question, but it just feels like an uphill battle sometimes.

Keep on raising awareness for me please!

On the plus side I’ve had some wonderful eating out experiences since lockdown. More on that soon!

Related posts:

We need an allergy tsarWe need an Allergy Tsar! Me at the BSACI talking about needle length of adrenaline auto-injectorsWhy ALL women with anaphylaxis should have an ultrasound Ultasound showing muscle depth of size 10 womanAdrenaline auto-injector review; needle length

Filed Under: Allergies, Anaphylaxis Tagged With: allergy awareness, allergy tsar, write to your mp about allergies

About Ruth Holroyd

Author of 'Anaphylaxis: The Essential Guide: An Action Plan For Living With Life-Threatening Allergies' and 'The Shape of Skin, both available as paperback or Kindle on Amazon. Ruth is a Writer, Blogger and Patient Expert in allergies, asthma, anaphylaxis, eczema and topical steroid withdrawal.

Comments

  1. MARIE TAPPIN says

    18/08/2021 at 6:32 pm

    Hi Ruth, my particular allergy is nickel which the vast majority of the medical profession are unaware.
    Nickel is contained in nuts, pulses, grains therefore my love of granary bread is out of the question.
    Anything from a can as cans leach nickel into food, no shellfish, salmon, smoked fish anything green, chocolate especially dark (my favourite) and many more things too numerous to mention.
    Regards
    Marie Tappin

    Reply
    • Ruth Holroyd says

      18/08/2021 at 9:19 pm

      Me too! I have a nickel allergy and doctors and allergists don’t ever tell you to avoid certain foods! I must get my head around this because I’m not hot on avoiding nickel foods

      Reply
  2. Rebecca Brunk says

    18/08/2021 at 11:04 pm

    You sound like your immune system has reacted like mine. I knew I was allergic but when my brother was diagnosed with Celiac, Bingo! It has made a world of difference to discover I had the same issue and after suffering for years I am doing better. Unfortunately, being unaware created leaky gut syndrome which causes you to develop more food allergies. Just thought you might want that information.

    Reply
    • Ruth Holroyd says

      19/08/2021 at 1:11 pm

      Thanks Rebecca, yes I have a very over active immune system. I’m slowly learning how to live with my life threatening allergies. Good luck with yours. I don’t think I have a leaky gut but I’ll look into that. I’d like to have a full lot of tests done into whether I’m deficient in any nutrients and vitamins to work out how to help my body respond.

      Reply
  3. Cressida says

    20/08/2021 at 10:06 am

    Done! Written to my MP. Thanks Ruth – I think you should be the Allergy Tsar <3

    Reply
    • Ruth Holroyd says

      21/08/2021 at 10:30 am

      Oh Good grief… me? I’d be very bad at behaving. I don’t think I could stomach all the lies and bollox but I’d be the Allergy Tsar’s secretary! In a heartbeat

      Reply

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Hi I'm Ruth. I've grown up with eczema and multiple life-threatening allergies and collected more as I've got older.  It started with a peanut allergy and now I'm allergic to milk, wheat, soya and many more. In this blog I share tips, advice and things I've learnt living with allergies, asthma and eczema with a focus on topical steroid withdrawal. You can buy my books, which are brilliant by the way! The first is Anaphylaxis: The essential guide and the second, The Shape of Skin, healing poems for eczema and sensitive skin. The reviews speak for themselves. If you want to chat you can find me on Instagram, Facebook, Twitter and LinkedIn (links below). Do get in touch. And please comment on blogs, it makes a humble blogger do a little happy dance!

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