This has been a long, long time coming but finally, all of us who reported our Topical Steroid Withdrawal (TSW) through the Yellow Card scheme can feel some relief that TSW is finally being taken seriously. A press release was released today, 15th September, during National Eczema Awareness Week to finally recognise that TSW is a thing! MHRA advises clinicians to be … [Read more...]
Help fund research for Topical Steroid Withdrawal
This is a REALLY quick blog to share a petition created by my lovely friend Sofia who is also going through topical steroid withdrawal (TSW). There is currently very little real scientific research going on and we need this urgently! If you don't know what TSW is, you can dive down a rabbit hole with my other blogs on the subject or read my new and growing TSW FAQ … [Read more...]
New Topical Steroid Withdrawal Frequently asked questions
I get asked the same questions over and over again, so here, finally, is a work in progress, my topical steroid withdrawal frequently asked questions. I will be keeping this updated as I get asked more questions and discover new exciting resources that might help you guys. These FAQs are for anyone: Who has eczema, uses topical steroid withdrawal and is worried and … [Read more...]
Protopic withdrawal and TSW
I've written a lot and read a great deal about Topical Steroid Withdrawal (TSW) but have seen very little discussion about the effects of long term use of Protopic, a topical immunosuppressant. I stopped using topical steroids on the 20th January 2019 so it's two years since I started this journey. In April 2019 I decided that I was equally as addicted to Protopic as I had … [Read more...]
TSW Update – 23 months steroid free!
I stopped using topical steroids on the 21st January 2019 and used Protopic for the last time on the 30th March 2019. That's 701 days or 23 months and 1 day Topical Steroid Free (at the time of writing) And 633 days or 20 months and 22 days Protopic Free (at the time of writing) These figures go up every day. And every day I am so glad I took this decision. I … [Read more...]