So I work in a School and we are having an end of term BBQ. I would usually bring in my own food for something like this. It's really hard for me to trust someone cooking a BBQ with so many opportunities for cross contamination and mistakes.I'm still not quite sure if I'll be up Monday night cooking sausages - LOL But my colleagues encouraged me to ask. There has been … [Read more...]
My Journey Through a Decade of Topical Steroid Withdrawal
This is a guest post from Nina Ajdin, a fellow topical steroid withdrawal expert, through personal experience. She has been going through TSW for ten years and I've learnt so much from our friendship. I first saw Nina on the Preventable Documentary - a brilliant short film about TSW. in this blog she shares what it's like to still be going through TSW after ten … [Read more...]
Ten reasons to use Red Light Therapy for TSW
I've been researching Red Light Therapy and Near Infrared Light for eczema and topical steroid withdrawal (TSW) damaged skin healing now for a long time. The price of the treatment and purchasing the panels was just a minefield and I just didn't understand the science behind how it worked. I started using Red Light therapy in March 2024 so it's early days for my treatment. … [Read more...]
Set intentions not resolutions for 2024
This year I'm not going to set any resolutions. In previous years I've written about this, and why I think New Year's Resolutions are Bollox. However, if you're like me, you do like a list, and that inner desire to keep on learning, developing, letting go of what no longer serves you and generally living a better life. What I don't like a resolutions is that they're so … [Read more...]
Why I hate Rachel Johnson’s horrible article
Thank you Michelle for drawing my attention to Rachel Johnson's, quite frankly diabolical article in the Evening Standard. You'll enjoy reading Michelle's well put together and brilliantly written, 'A food fad won't kill you, an allergy will.' But you'll be seething when you read, "Endless dietary requirements are a sign of our decline as a society". Rachel is a well … [Read more...]
The twelve days of #tswmas (topical Steroid Withdrawal Christmas)
I hope you enjoy this lighter post, just to try to explain what it's like to be ill at Christmas. I'm not saying anything about my skin, I don't want to jinx myself or encourage another Christmas Eczema Flare! 12 Days of Christmas - the eczema skin version On the first day of ChristmasTSW gave me to mea spreading and worsening rash. On the second day of … [Read more...]
Can Artificial intelligence write better, faster blogs than me?
I've been meaning to use Chat GPT to help me draft blogs for some time, and finally, last week I took the plunge. New technology can take a while to understand, I tend to have a short attention span, and if I can't work it out in five seconds I'm off onto the next thing. Can Artificial Intelligence (AI) replace bloggers? The short answer is no, it absolutely cannot … [Read more...]
Your guide to ‘dry eye’ causes and symptoms
Dry eyes and allergies often go hand in hand. You could have both conditions at the same time, or just one, but how do you tell the difference? And how do you treat them both? How do you tell the difference between dry eye and allergies? It can be confusing to work out which condition you have. Always seek medical advice if you're unsure. Symptoms of dry … [Read more...]
Why do we think eczema is ugly?
I heard someone say this last week and it really struck deep. It was a podcast conversation with a mother discussing her child's 'ugly eczema' and it made me feel so judged, triggered and challenged. Now I don't want to get into blaming this mother, I love her podcast and think she's talented, funny and a very kind person. So I'm not even going to tell you who it was. But I … [Read more...]
How to avoid scalp and skin flare ups from your hair cut
Getting your hair cut when your skin is challenging, both on your face, neck and scalp is one of the hardest things to navigate. It can mean sometimes people go years without having a haircut. There are so many reasons why this is so hard. This blog looks at the reasons why and what you can do to stay safe and avoid a skin flare. 10 reasons I find getting my hair cut … [Read more...]
Adrenaline needle, nasal spray or sub lingual for anaphylaxis?
100% of people would rather not be using adrenaline auto injectors with needles! In fact we all hate the needles, it's just added stress to the whole situation. I just made up that statistic, but help me prove it. I'm asking all those with severe allergies to answer me one question: Would your rather inject adrenaline or use a nasal spray? If you have time, please pop … [Read more...]
25% of severely allergic people leave adrenaline at home
That's a lot of wasted adrenaline - if a quarter of people who are prescribed life saving anaphylaxis medication are not carrying it with them at all times. It's also pretty risky behaviour, but it's easy to think you'll be OK and that nothing will happen to you. Recent survey assessed allergic peoples habits Government guidelines recommend people at risk of anaphylaxis … [Read more...]
Do you need Health Insurance for Allergies & Asthma?
Allergies and asthma are more than just an inconvenience; they're a serious health concern that's on the rise. If you're among the millions who experience these conditions, you know that symptoms can be unpredictable and sometimes even life-threatening. Health insurance isn't a luxury in this context—it's a necessity. From potentially sky-high medical bills to accessing … [Read more...]
Are you a dermatologist? We need you!
This is a very quick plea for a dermatologist to work with a the brilliant natural skin care brand Balmonds. This is a paid project, so please pass this on to any dermatologists you know who you think might be interested. Qualification criteria They are looking for a dermatologist with over five years experience in clinical practise with experience in the field of … [Read more...]
Why I threw out all my old bras
Those of you who follow What Allergy regularly may have seen a previous blog about soft, comfy non-wired bras; I went down a rabbit hole of research and discovered loads of options. Check out "Wireless comfy soft bras for sensitive skin" for the full run down of kinder bras for those sensitive types out there. But first, a rant about boobs and bras! Your boobs are the … [Read more...]
Flying with allergies – Airlines can do better!
In this guest blog post from my favourite allergen safe snack company, Creative Nature raises the topic of airline travel for those with allergies. Enhancing Airline Travel for Allergy Sufferers: A Call for Inclusive Changes Airline travel has opened up new horizons for global exploration, yet the journey for those with allergies often comes with hurdles that dampen the … [Read more...]
10 simple hacks to safely patch test your skincare
If you have sensitive skin, eczema, psoriasis or topical steroid withdrawal it's likely you've tried a hundred different products with little success. Many skin care brands can cause irritation to allergy prone skin so you need to be careful, always check ingredients and ALWAYS patch test before using. What is skin care testing? Not to be confused with allergy patch … [Read more...]
Hospital admissions for life-threatening allergic reactions ‘more than double’
The number of hospital admissions for life-threatening allergic reactions has more than doubled in the last 20 years, according to research figures from the NHS and MHRA published in the Guardian. Medicines and Healthcare products Regulatory Agency (MHRA) say that in 2022/23 there have been 25,721 admissions to England’s hospitals for allergies and anaphylaxis, which is more … [Read more...]
OMG! Me in a film on eczema and mental health
In June this year I joined Lucy from Balmonds Skincare at ITN studies to take part in a video with the British Skin Foundation called Skin: Below the Surface, hosted by Louise Minchin. You can watch the Balmonds clip here: The short film explores the importance of having choice in your own skin care, agency to follow a natural healing path, representation of different skin … [Read more...]
Why you should never use SLS but SLES is the best!
If you have sensitive skin the chances are you'll know all about Sodium Lauryl Sulfate (SLS) and how bad it can be for the skin. It used to be an ingredient in all the eczema and dry skin emollients but is now widely known to be a skin irritant. You'll see so many products labelled as SLS free. But what about SLES? Many people wrongly assume these two skincare ingredients … [Read more...]
Crikey I’m in the Top 10 Best UK Eczema Blogs
This month Whatallergy.com was listed as one of the Top Ten Eczema Blogs by Feedspot. Another fantastic opportunity to celebrate excellent bloggig!If you have eczema there are some other great eczema blogs to follow; let's share some eczema love. Blogging can be a thankless task, and it's so hard to get comments on blogs these days. Feedback, reviews and comments on your … [Read more...]
Representation of ‘real skin’ in media
When was the last time you saw someone on TV, in a film, a sitcom, in a magazine or an advert for skin care products who actually had even the tiniest blemish? Representation of 'real skin' in our media needs to be addressed as a priority. I'm not saying all products must show really serious skin conditions but we rarely see anyone like us represented anywhere. Here are the … [Read more...]
Top 10 things that REALLY helped my eczema skin
I get asked all the time for advice from people with eczema, topical steroid withdrawal and atopic dermatitis and find myself giving the same answer over and over again. The good news is that it's not complicated. The bad news is that we are all completely different and complex. What works for one person may not work for others. I hope these things help, and hope you find … [Read more...]
We urgently need topical steroid withdrawal research
No one knows how many people have topical steroid withdrawal (TSW). This condition is drastically underestimated because the vast majority of those experiencing topical steroid addiction (TSA) and TSW are undiagnosed, dismissed and end up going through the withdrawal process alone. Even the charity for TSW, ITSAN, don't have figures for its prevalence. The reason is that … [Read more...]
The best food allergen conference ever!
I've spoken at a lot of events and conferences over the years and all of them have been good. This event however was really special and it reminded of the excellent events organised by the late Jeffrey Hyman and the much missed FDIN - Food and Drink Innovation Network. Jeffrey really GOT 'free from' and championed for awareness and inclusion before anyone else was doing … [Read more...]
Updated advice on using Epipens and AAIs
Do you know how to use an adrenaline auto injector (AAI)? Even if you think you do, please have a quick scan and read of this blog post with updated guidelines from the Medicines & Health Regulatory Authority (MHRA). Click here to Read the new guidelines for using AAIs. What is anaphylaxis? With over 20% of the UK’s population affected by at least one allergy, … [Read more...]
Famous comedian is an allergy bully
Alan Carr's response to being told someone is allergic to coriander is not to accept it and show compassion; it is to laugh at the woman, do this loudly so everyone hears and then shove coriander into her mouth. Shocking isn't the word! Firstly thanks to my wonderful brother who read this article and thought of me, he knew my spider senses for injustice in the face of … [Read more...]
Discover the best Topical Steroid Withdrawal blogs
I am so thrilled to share that my blog has been voted in the Top 10 Topical Steroid Withdrawal (TSW) blogs by Feedspot. What is topical steroid withdrawal? If you're new to this blog you might not have heard of TSW, it's an intragenic (caused by medication) condition that can affect anyone who uses topical or oral (the name it's quite cutting it here) steroids, and … [Read more...]
Did Covid cause asthma and eczema flare?
Well, it finally got me! After managing not to catch Covid-19 through the whole pandemic, my body finally succumbed. Many people have begun to forget about Covid now; it's a bad dream, a distant memory, not a concern any more. Certainly since government advice is that we don't even need to test or isolate any more, it seems like Covid might be on the way out. Worried … [Read more...]
Paraffin is the worst thing for eczema
Paraffin emollients are the first line of treatment for people with eczema. Nearly all mainstream emollients prescribed or recommended for people with dry eczematous skin contain predominantly paraffin. Look at your tubs and tubes and they will all be high in paraffin wax or other derivatives. If you have eczema, atopic dermatitis or psoriasis you will doubtless know the … [Read more...]
It’s rude to ask someone about their eczema
Going through topical steroid withdrawal these past few years has taught me so much. It’s been very hard to go out into the world with a face that doesn’t look like anyone else. It’s shocking and dramatic and I don’t blame people for noticing but I do hate it when people feel they have a right to my story. If you’ve ever said something and wished you could retract it, hit … [Read more...]
What if I never heal from TSW? Long Haul Hell!
Going through topical steroid withdrawal (TSW) is hands down the hardest thing I've ever decided to do. I was going to write 'done', but it's not done yet. At nearly 4.5 years in now I'm still experiencing TSW symptoms: I can handle the rest of my body because I can cover, bandage and hide it much more easily. The face is often the worst affected area in TSW It's … [Read more...]
Earn money for sharing YOUR medical insights
This one's for all you clinicians, nurses, doctors and medical experts out there. I know some of you read this. You could earn money for answering surveys based on your experience as a clinician or health care expert. Make your mark on market research by taking Sermo's paid medical surveys for physicians. Who are Sermo? Physicians, join Sermo to swap insights and get … [Read more...]
Why you should eat turmeric eczema & asthma
Inflammation can affect many conditions, including asthma, allergies, eczema and psoriasis. So what can we do to help reduce that inflammation in our bodies? There are loads of things that can help, including: And many many more things. It takes a lifetime of searching for all the little triggers that might cause one person inflammation and no two people are identical so … [Read more...]
Calling all food service companies
If you work in food service you need to be looking at attending this event, Catering for Allergies - Creating a dialogue in the hospitality industry. It's taking place on Wed, 21 Jun 2023, 9:30 - 5pm at the School of Chemical Engineering in Birmingham. Event details Catering for allergies is a complex topic, which often brings up confusion and controversy. Our aim … [Read more...]
Please cover up your eczema / psoriasis, it offends me
Imagine you're a guest at a friend's wedding and the bride asks you to go home and cover your skin because she doesn't want other guests having to ask about and being put off their food. What would you do? I've just read an article, "Woman leaves friend's wedding after being called out for not covering her skin." and it's sparked a whole debate in a whatsapp group I'm in. … [Read more...]
Roundup of sensitive skin deodorants
This is such a hot topic for me, having struggled with both shaving due to very sensitive skin and also finding a deodorant that doesn't irritate my skin. I have spent HOURS researching this, so I thought I'd share my findings with you guys. I hope it helps. For transparency, I've not used all of the below, but some I have tested and loved. Bionsen was my go to for years and … [Read more...]
Does your baby have a cow’s milk allergy?
If you have a baby that has a diagnosed dairy milk allergy, or you suspect they are reacting to milk, you could be eligible to take part in a special study, The Dream Study, which aims to explore desensitisation to cow's milk allergy. A randomised controlled trial assessing Desensitisation to cow's milk, following partially or extensively hydrolysed formulae feeding … [Read more...]
20 tips for Cow’s milk dairy allergy in cafes
Living with a dairy allergy means I'm not an expert in navigating possible exposure to airborne and the cross contamination from dairy in cafes and restaurants and I have come up with my top 20 tips for eating/drinking out with a dairy allergy SAFELY! Staying safe with Dairy allergy in cafes - airborne and cross contamination I've got a few things that I do on the … [Read more...]
20 tips for Free From food on a tight budget
This cost of living crisis we are going through at the moment is really tough. Everything costs more, from petrol to bread and milk, and there are shortages too of staple goods. If you're allergic to certain food allergens, buying even basic food items becomes a real struggle and a constant worry. 20 tips for saving money on free from food on a budget Saving money on … [Read more...]
Your cough medicine could cause anaphylaxis
Recent shocking news that an ingredient in many high street over the counter cough medicines might be linked to anaphylaxis is worrying news for anyone who struggles with congestion, coughs and colds. This applies to all cough medicines that contain Pholcodine. Anyone who has used these cough syrups within the last year could be a risk. The Medicines and Healthcare … [Read more...]
What if you couldn’t have your Ventolin inhaler?
If you have asthma you may well have been prescribed a Ventolin blue reliever inhaler to help reduce symptoms of asthma attacks. I've certainly been using one for years, since childhood. Look out for this old faithful drug to be replaced soon, as Ventolin seems to be on the way out as an asthma medication. Your GP rejected your medication request! A while ago the asthma … [Read more...]
Why haven’t you read my book yet?
Tomorrow is world book so what better way to celebrate the power of words, writing and reading to soothe the skin. Writing my poetry book, The Shape of Skin was a labour of great therapy and a growing love for my own skin. If you love reading, check out this wonderful blog, reviewing three eczema books, Reading to soothe skin from the Eczema Clothing company. They've looked … [Read more...]
How Vinted got me money and more active!
It helped me to declutter my life and home while saving me money and making me some cash too. I know this is a break from the usual blogs I write, but I was just ruminating the other day about how my new Vinted habit has got me out for regular walks almost every day, even days when I really don't feel like venturing out. An unexpected benefit of thrifting. What is … [Read more...]
Dairy allergic ate buttermilk by mistake
Last month I ate buttermilk - And nothing happened... why is that? So what is buttermilk? Buttermilk is a fermented dairy milk product, it's when the milk is curdled and often has good bacteria added to it so that it is cultured. There is still milk protein left in buttermilk but perhaps slightly less than the original full fat milk used to make it. For more on … [Read more...]
Allergy-friendly, nut free, Tiger Nut Cookie recipe
Check out this nut-free take on peanut butter cookies, made safe for those with common food allergies! These incredibly soft cookies aren’t just nut free, they’re also dairy free, grain-free, gluten free, and vegan. They take around 20 minutes to make from start to finish and make the perfect dessert for those with food allergies. This recipe uses Natureul Tigernut Kasha and … [Read more...]
#CORTICOPHOBIA – WORST ARTICLE I EVER READ!
Topical steroid phobia, or 'Corticophobia' a phrase coined by dermatologists to help them categorise the hysteria of their patients, is possibly one of the most insulting phrases I've heard in relation to eczema and topical steroid withdrawal. This study has appeared in The Educational Journal of The British Association of Dermatologists and was written by: I have tried to … [Read more...]
Allergic Reactions and Blood Circulation: What You Need to Know
The most dangerous symptom of an allergic reaction is your body going into anaphylaxis. It creates a significant problem within the immune system and contributes to poor blood circulation and heart issues. If you are at risk from allergies and are concerned about your blood circulation, here’s all you need to know about how they work together. What happens during … [Read more...]
Are you taking collagen for your eczema skin?
There are loads of skin health trends at the moment but one that seems really popular is taking collagen supplements. Firstly it's not just for women, men can benefit from taking collagen too. But it's a real buzz word and there are so many brands out there. How do you choose one and how does collagen work? Different ways to take collagen There are lots of different … [Read more...]
Can fasting help reduce allergies?
Many people try fasting to help them lose weight and benefit their health. There are numerous advantages that intermittent fasting can help with besides weight loss, including boosting your brain power and decreasing the risk of diseases. Most people adopt the 16:8 rule of fasting. It means that you only eat in an eight-hour window, and fast for the other sixteen hours. To … [Read more...]
New, free-from, plant-based growing-up drink for toddlers
In the first of a series of guest blogs, today we hear from Amy, the founder of Grow with Iris, who I met at the Allergy Show in Birmingham last year. Milk allergy statistics in the UK According to the The Association of UK Dietitians (BDA), in the UK, Cow's Milk Allergy (CMA) affects 2-3% of babies and young children up to the age of five. It's also one of the more … [Read more...]
Managing Allergic Symptoms to Prevent Bladder Incontinence in the Elderly
Allergies are never any fun for anyone. However, something most of us don’t probably consider is how hard they may be on the elderly. While allergies may not cause bladder incontinence in the elderly, they certainly can cause symptoms to worsen. The good news is that there are a number of ways you can manage both allergies and bladder incontinence to ensure you or an … [Read more...]
Honey for eczema: Exploring the benefits & proper usage
Winter is here, and dryness of the skin is one of the main concerns both men and women face in cold areas. The problem gets severe for those with skin conditions like eczema. Eczema, also known as atopic dermatitis, is a chronic skin condition characterised by dry, itchy, and flared skin. It is a common condition that affects people of all ages; it is most common in … [Read more...]
Adrenaline auto injectors – are they out dated?
The current adrenaline auto injectors (AAI) are pretty big aren't they? Anyone who has tried to pack for a trip out will know, carrying two takes a sizeable bag. If you bring inhalers, antihistamines and other medication it's a large bag! "According to the Mayo Clinic, more than 200,000 cases of anaphylaxis occur each year in the United States. The World Allergy Organization … [Read more...]
Top 14/19 allergens? Gluten free cereals & GF oats
Are there just 14 top allergens in the UK? Or are there actually 19? For people with allergies, there are six separate cereal containing grains that they could be allergic to. In America they are now 9 allergens that must be labelled, a move that updated the list to add sesame in January 2023. For coeliacs they will react to all of the gluten containing grains, whilst … [Read more...]
20 Resolutions for eczema & TSW people!
Another year has passed and I'm approaching four years in topical steroid withdrawal which is incredible really. I'm not healed completely yet but when I compare my skin to year three I've healed so much. I think last year started with my worst flare ever, but realising I'm still going through it so long after quitting is a bit heart breaking. We all dream of finding that cure, … [Read more...]
Top 10 New Year resolutions for allergic people
Have you made any New Year’s resolutions this year? Here are a few ideas that could keep you safer with life threatening allergies! My New Year's resolution is to be prepared! It really does make living with allergies much easier; be prepared when eating out, going away, cooking at home, visiting friends, out shopping. Live your life to the full and enjoy it. Don’t sit … [Read more...]
2 million missing Christmas due to allergies
Food allergies and rising costs leave 2 million households without a traditional Christmas dinner! Research from Allergy UK today highlights how food allergies and the cost of living may prevent nearly 2 million2 households from enjoying traditional festive food favourites this year. This means a potential 4.8 million3 Brits will be settling down to their Christmas dinner … [Read more...]
Signs & Symptoms of Cannabis Allergy
In this article, we’re going to be looking at the signs and symptoms of a cannabis allergy. Using cannabis can cause many issues for a person in life. For example, if a person is found guilty of a conspiracy to supply cannabis, they can face a heavy fine or even a prison sentence. Using cannabis can also have a considerable impact on a person’s health, in some cases a … [Read more...]
A huge thank you from what allergy
Firstly I wanted to thank each and every one of you, for everything. For all your support, reading my blog posts, commenting, sharing and just being all round good friends to me over the many years I've been waffling away on this blog. Thank you all Thanks to those who came and visited me on my stand at The Allergy Show this year. What an incredible experience. I loved … [Read more...]
Top 20 gifts for someone with eczema or TSW
Buying gifts for someone with sensitive skin, or with topical steroid withdrawal (TSW) and also potentially someone going through a really terrible time too, can be daunting. You can't reach for the obvious chocolates and smellies as they may well be avoiding skin care products and watching what they eat. Unsuitable gifts It can be very easy to get it completely wrong … [Read more...]
Air fryer vs Microwave with food allergies
If you have a small kitchen but want the time savings of a microwave the air fryer might be a brilliant alternative. Having just updated my tiny kitchen I wanted to try and integrate a microwave but I've not had one for so long... and worktop space is precious in a small kitchen. Where would I put the microwave? They're big and take up counter space. I'd also been … [Read more...]
How The Emotional Freedom Technique Can Help You Live A Less Stressed Life
Short-term stress is uncomfortable at best. It can lead to mood changes, feelings of anxiety, trouble sleeping, muscle tension, and fatigue, alongside other impacts. If stress is prolonged, the effects become far more serious, leading to an increased risk of heart disease, diabetes, anxiety, and depression. Stress can disrupt work, education, interpersonal relationships, and … [Read more...]
Why Should You Be Taking A Collagen Supplement?
Collagen supplements are one of the most popular ways to take care of your body. You should take collagen tablets for hair and skin to improve your health and wellness. It can help promote glowing skin. Most collagen in the body accounts for 75% of muscles and skin. It's also the building block of collagen-rich foods like fish, chicken, and eggs—which means you can get … [Read more...]
‘Food to go’ with serious food allergies
It's always been a problem for people with food allergies all over the world, there is little safe choice for lunch or snacks when you're on the go. And if you are brave enough to try, there are fewer and fewer options available. I'd love to hear your suggestions because I really struggle. I often end up with an apple and packet of crisps. Long live the trusty oat cake! It … [Read more...]
FREE ‘Skin Conditions Guide’ to eczema
If you have any kind of inflammatory skin condition, check out this new FREE Skin Conditions guide from Balmonds. It is jam packed with well researched and beautifully put together information including: What are skin conditions?What causes them?What can you do about them? I'm very proud to have played a small part in contributing some content for the section on … [Read more...]
Please stop using the word sufferer
If you start to pay attention, you'll hear people with allergies described as 'allergy sufferers' all the time. The same for atopic dermatitis and eczema, the term 'eczema sufferers' is used as if the person were in constant pain with the condition. It's a term that we all need to stop using, because in most cases people really don't like to be called sufferers. I understand … [Read more...]
Report medication that makes you ill
This week is the seventh annual #MedSafetyWeek, a global campaign aimed at encouraging people to report medication that makes them ill or causes serious side effects etc. If we don't do this, we can't hope to help others. If people don't use the reporting procedure, medication could continue to affect others. In this blog you'll find out how to report an adverse drug … [Read more...]
Bronchial thermoplasty is one of the best modern treatments for asthma
The Professional Master’s Degree in Allergology of TECH University is designed to train experts to give the best service to patients with this common disease. As is well known, asthma is a chronic disease that causes the airways in the lungs to swell and narrow which causes shortness of breath such as wheezing, shortness of breath, chest tightness, and coughing. It could … [Read more...]
The ultimate gift for people with eczema
Look no further for suitable Christmas, birthday, or just because you love them gifts; The Eczema Sample Store has just launched its Eczema Box scheme into the UK. Already doing well in America, The Eczema Sample box provides recipients with a selection of useful, suitable and perfect gifts for anyone with sensitive skin, but particularly those living with eczema. It can be … [Read more...]
Wearable air purifier for allergies
Have you ever wished you could put your head in a bubble and go about your daily life unhindered by allergies? Or that you could visit that friend who has a furry, cute, cat and actually relax; even maybe pet the cat and not become overcome with dripping nose, watery eyes and asthma? With this Respiray wearable air purifier this dream may not be possible. The device has … [Read more...]
Is it ‘steroid blisters’ or Eczema herpeticum?
If you've ever had experience of a cold sore you'll be familiar with the herpes simplex virus, and the painful blisters that come with it. Eczema Herpeticum (EH) is a nasty and very contagious virus that can get into broken eczema skin, causing blisters much like the cold sore virus in appearance. However it can also occur on healthy skin, it's not just eczema skin that is … [Read more...]
How to respond to TSW and eczema gaslighting
Ever been gaslit by your doctor, GP or specialist dermatologist? This probably happens for people with any conceivable medical complaint or long-term condition. I don't think it's just reserved for eczema and topical steroids. For the purpose of this gaslighting course we are just concerned with topical steroid withdrawal and how it is currently viewed by the specialists we … [Read more...]
10 tips to enjoy your massage with eczema skin
If you're nervous about having a massage due to sensitive skin you're not alone. If you have eczema, psoriasis, acne or topical steroid withdrawal, spa days and massage treatments can be daunting experiences. You've probably felt the itch and had hives after what should have been relaxing and calming facial. It can be frustrating that you can't enjoy the simple pleasures … [Read more...]
Hospital admissions for anaphylaxis rise
Hospital admissions for allergy and anaphylaxis begin to increase following COVID-19 pandemicNew figures published on 22nd September 2022 by NHS Digital show an increase in hospital admissions for allergy and anaphylaxis for March 2021 to March 2022. Every September, NHS digital releases data about patient admissions to NHS hospitals across the UK for the previous year. … [Read more...]
Trigger warning! What caused that skin flare?
If you've got eczema, you'll have been asked this time and time again. "What caused that skin flare?" It's something I was asked constantly throughout my topical steroid withdrawal journey. It's a bit of a trigger because we can never be 100% certain about anything. There can be so many potential triggers and skin can flare up for no reason at all! And what causes … [Read more...]
Top 10 allergen free chocolate and biscuits
If you're allergic to dairy, nuts, soya or wheat most mainstream shop bought chocolates are off limits. You can't just walk into a newsagent and buy free from chocolate, however ranges are growing at health food shops like Holland and Barret or a larger supermarket free from aisles. If chocolate ingredients look allergen free, they often have 'may contain' warnings and even … [Read more...]
Talking about eczema with Ashley & Marie
Atopic eczema (also known as atopic dermatitis) is one of the most prevalent skin conditions globally, affecting over 230 million people worldwide. It is often dismissed as “just a skin condition", but it is more than itchy skin. It is a complex, multidimensional condition that impacts mental health, impacts daily life and places an immense burden on patients and … [Read more...]
The best washing powders for eczema skin
If you have eczema or sensitive skin, it's worth investigating what washing powder is kindest for your skin. Biological washing powders, fragrances and conditioners can all irritate the skin. Non-biological washing powder or liquid is far kinder and proven to be better for eczema skin. Even if you don't think you are reacting directly, the more you can simplify the world … [Read more...]
Buy a signed copy of the The Shape of Skin!
and get an itchy bookmark free! Because it's National Eczema Week I thought I'd offer signed copies to you lovely readers. Get your signed copy of The Shape of Skin with a free itchy skin bookmark for just £9, including postage. This offer is only available for UK residents. Please email me if you live overseas and I can work out postage.Click on the 'Buy Now' Button … [Read more...]
Clothing for eczema and sensitive skin
I've been meaning to share my thoughts on this for so long and can't believe I've not blogged about it already. If you have sensitive skin, no doubt you'll be familiar with getting a rash and irritation from certain clothes! Not all fabrics are made equal and there are some definite materials to avoid, but also some great sensitive skin alternatives. What fabrics should I … [Read more...]
LinkedIn Live – World Atopic Eczema Day
This week is National Eczema Awareness Week and I'll be going live on LinkedIn on Wednesday 14th September at 4pm UK time, with my lovely friend and eczema blogger Ashley Wall who writes the Itchin since 87 blog. Join me on LinkedIn Live for World Atopic Eczema Day What is atopic eczema? Atopic eczema is one of the most prevalent skin conditions globally, affecting … [Read more...]
Choosing the right bra for allergies & eczema
This one’s for all the sensitive skin allergy girls! Sorry boys. You might want to skip reading this one, unless you want to surprise your other half with a pretty and comfortable new bra that they’ll love! Maybe you’ve never given your bra choice much thought before, but I’ll bet you can’t wait to take it off at the end of the day. Bras can be uncomfortable, restricting, … [Read more...]
Anti-allergen silver bedding for eczema skin
Ever heard of cotton silver bedding? Sounds fancy doesn't it? I hadn't come across this type of bed linen until coming across Silver Guard; natural cotton bedding with ionic silver that works as a natural defence, is antimicrobial and supports healthy skin. Silver has been widely accepted for its healing and anti-microbial powers for centuries - I've used colloidal silver to … [Read more...]
Latex allergy – do wetsuits contain rubber?
Since discovering how incredible it feels to swim in fresh water over the last few years I always wished I could get my own wetsuit. I always assumed they would contain latex but this year I now have my very own wetsuit which I don't react to. I'm so excited to start doing more wild swimming. Why swim in fresh water if you have eczema? So many reasons people; apart from … [Read more...]
No more allergies & asthma, book review
I've just finished reading 'No More allergies, asthma, or sinus infections' by Dr Lon Jones and it's turned everything I knew about asthma on its head. I've already been rethinking everything since stopping the use of the oral steroid preventative inhaler but this book takes it a step further. NB: Please note, I am not a doctor and am not advising anyone stops using their … [Read more...]
Get £10 off an OddBox Veg and fruit box
I've been loving my Odd Box veggie box; I get a mixed fruit and vegetable box every two weeks and it's really affordable at just £14. Why did I choose Odd Box? There are loads of fruit and veggie boxes here in the UK and I'm sure they're all great. However I wanted to find seasonal, local (where possible) produce and a company that cared about the planet. Odd Box stood … [Read more...]
Water softener for eczema – 9 months on
If you follow my blog you'll know I've had a Harvey Water Softener now since November 2021 and I'm loving it. I have not looked back. It's been such a dream come true, something I've longed to do for years and I am now never going back to hard water. So what have I learnt in those nine months? What have I learnt from having a water softener? I think I've … [Read more...]
Do you need help? Are you distressed?
I get so many messages from people who are desperate for help, people who are anxious, having panic attacks and feeling like they can't find the answers they need. There is a huge gap in the care of this nation. People are falling between the cracks and our NHS cannot cope. Whether you are scared of anaphylaxis, struggling to cope in topical steroid withdrawal or trying … [Read more...]
Red Light Therapy Pros and Cons for Your Skin
A complete guide to Red Light Therapy Red Light Therapy (RLT) is a treatment that uses specific wavelengths of light to improve the appearance of your skin. It has become increasingly popular in recent years, and there are many different products on the market that claim to offer these benefits. Some people swear by its results, while others are unsure about whether or … [Read more...]
Proud to be in Top 10 health blogs 2022
I've been selected in the Top 10 health blogs yet again, for the sixth year running and I'm so proud. These awards are chosen by Vuelio and you can see the Top 10 here, Healthcare blog UK Top 10. I've just had a scout over all of the above and I have to say, I'm amongst very strong company. All great blogs and if you're interested in any of the topics mentioned above, … [Read more...]
More TSW Gaslighting – I’m fuming!
I recently came across an article written on 29th June 2022 by Kui Mwah, a journalist who has eczema and uses topical steroid creams. She interviewed people about Topical Steroid Withdrawal on Tiktok and also found dermatologists to consult. And you guessed it, the dermatologist gaslights us yet again. I'm so disappointed to read yet more gaslighting... it's so … [Read more...]
20 tips for being an eczema & TSW advocate
I've been advocating, sharing, fundraising and talking about eczema and topical steroid withdrawal (TSW) now for many years, long before I started this blog, so I thought I'd write about how you can advocate, whether you have eczema, TSW or skin sensitives yourself or not. Eczema and Topical Steroid Withdrawal community - You don't have to be a blogger, speaker or sharing … [Read more...]
I’m exhibiting at the Allergy Show 2022
I'm so excited to be exhibiting at The Allergy Show 2022 this year alongside my good friend Liljia of Allergy Companions. What I call, The Trip Advisor for people with allergies! It's taking place from Friday 1st July to Sunday 3rd of July at the Excel exhibition centre in London. Top tips for attending the Allergy Show Here are my tips for making the most of the … [Read more...]
Penicillin is the UKs most common allergy!
From pets, to foods, to metals; anything can be an allergen in today’s world. But what are the people of the UK most allergic to? I think many people might assume it would be nuts or cow's milk, so you might be surprised by the results of this recent study. New research from William Russell has identified the most common allergies in the world’s most populated … [Read more...]
10 things your asthma nurse won’t tell you!
Asthma affects over 8 million people in the UK alone according to the British Lung Foundation and it is a dangerous condition when poorly managed. According to Asthma UK, there has been a 42% increase in deaths amongst people aged 35 – 44 in the last year. Read, Asthma death toll in England and Wales is the highest this decade. Visit the Healthline website for another great … [Read more...]
Elimination diet for asthma, eczema and allergies
If you think you have gut issues that may be affecting your asthma, eczema and allergies, then the only real way to find food culprits is to do an elimination diet. I will start by saying I'm not a medical expert and I would urge you to find a dietician or nutritionist who can help and guide you through this process. However I did this diet in my 20s when I think I went … [Read more...]
TSW is NOT a social media trend – TSW RANT!
Today I read an article in the Washington Post entitled, What is Topical Steroid Withdrawal? You might be thinking, fantastic! That's amazing coverage, but I'm left fuming at the journalists lack of research and general dismissive attitude towards people going through this. Here's why I hate this article, written by Tonya Russell - I've just tweeted here my blog response … [Read more...]
Government response to TSW petition for research
Thank you to everyone who signed the Change.org petition to push for funding and research into Topical Steroid Withdrawal. We needed to get 10,000 signatures to get a response from the government and they have responded. This is just the beginning... Here is the Government response in full: This response was given on 12 May 2022 Adverse reactions from topical steroid … [Read more...]
Speaking at a Food Allergen Forum
This week I was honoured to attend as the guest speaker at the Lancaster Food Allergen Forum, at Morecambe Football Club in Lancashire. It was a fantastic opportunity to share the experience of the allergic consumer, some of the challenges and fears we face and what we'd like to see from food service businesses. There were 50-60 delegates at this event which was great to see … [Read more...]
Boiling Point, anaphylaxis film review *****
A friend recommended that I watch this film (thanks Steve) and boy did it hit home. It really shows what a melting pot of potential disasters and mishaps a busy kitchen is. If you run a restaurant or food service business you have to watch this film. I watched in free on Netflix. Trigger warning... anaphylactic reaction If you have anaphylaxis and have ever had an … [Read more...]
Allergy Awareness Week and we are 13!
This month marks thirteen years of blogging about allergies, eczema, asthma and anaphylaxis! It's been a blast and I am still loving blogging. But we still need to keep raising awareness; there is still so much misinformation and lack of awareness so I won't be stopping sharing and advocating any time soon. Allergy Awareness Week 2022 There's loads going on this … [Read more...]
Long Covid, ME, TSW and diagnosis…
Long Covid is a recognised condition, one that doctors are learning to recognise, diagnose and support patients through. Yet it's a tricky condition to identify, so it's not easy to test for. Yet the guidelines for doctors encourage them to diagnose patients even if they have one symptom. This recent article by Michelle Berriedale-Johnson, Long Covid, gave me so much hope … [Read more...]
Topical Steroid Withdrawal Studies
What can we learn and what research has been done so far into topical steroid withdrawal? It would be easy to assume there had not been any studies made into this complex condition judging by the lack of medical support and diagnosis pathways. However as you can see, there have been quite a few, as far back as 1979! and even one in March this year! Quite a few Topical … [Read more...]
Buy Coop Free From – support The Natasha Foundation
Any free from products bought from the Co-op Free From range between Wednesday 13th April and Tuesday 3rd May will see a donation of 10% made directly to The Natasha Research Foundation (NARF) charity. What is The Natasha Allergy Research Foundation? The Natasha Allergy Research Foundation (NARF), is the cause behind Natasha’s Law, in honour of Natasha Ednan-Laperouse … [Read more...]
Are allergen free menu choices shrinking?
Since lockdown ended and we can all start to go out to restaurants to eat again it became evident that choices for free from foods had drastically reduced. But why is that? Why have our allergen free choices reduced? It's understandable why when you start to think about it. Shortages of ingredients due to the current warIncreased costs due to BrexitLess availability of … [Read more...]
Reframing skin flares as healing
This applies to anyone going through topical steroid withdrawal really as skin flares can signify issues, triggers, allergies or stress that needs to be addressed. But if you're going through TSW the flares are probably often just skin your healing. It can feel like a constant attack, like it's never ending and the flares just keep coming. That's because they do, when … [Read more...]
Is blogging dead? Do I keep blogging?
I've been blogging now for over thirteen years and I love it. What began as a hobby now generates income and is a passion that fuels me daily. I have so many ideas for future blogs and so many things I want to write about, but blogging is tough. Do I keep going? Are you guys loving my content? or losing interest? Because the stats speak otherwise. Over the last few weeks … [Read more...]
Free From Hero Award 2022 – Vote now!
I still can't quite believe that I won the Free From Food Awards Hero Award in 2021 and I'm still so proud! It's that time of year again to vote for your Free From Hero of 2022, but there are a few weeks left. The deadline for voting is 31st March 2022. Who is your favourite Free From Hero? Who do you think goes the extra mile, to serve the allergy community, … [Read more...]
Why won’t anyone talk about topical steroid withdrawal?
Why are people so scared to stand up and talk about topical steroid withdrawal? Why is it such a taboo subject? I know you love my rants and this one has been bubbling since last Friday, so I'm warning, I am about to let rip. Doctors, GPs and dermatologist mostly refuse to even acknowledge TSW even exists and this creates a lot of problems. I'd like to firstly thank … [Read more...]
The 10 different types of itching and scratching
If you have eczema skin you'll understand the itch. It's something everyone with sensitive skin, from psoriasis to rosacea, and atopic dermatitis to topical steroid withdrawal has expert experience of. And all everyone tells us to do is to stop scratching... if only it were that simple. Never tell someone to stop scratching So firstly, if you've said that anyone, your … [Read more...]
Equal Eats Ambassador and 10% off allergen cards!
I was recently asked to test out the new website for an exciting new product, coming from our favourite Canadian Kyle Dine, he has created Equal Eats dietary allergen cards. Kyle has allergies himself so he gets it and understands the challenges we all face in the day to day. If you haven't come across Kyle yet in the allergy world, check out his website, particularly if you … [Read more...]
TSW awareness in the Daily Mirror
On Tuesday 8th March 2022, Topical Steroid Withdrawal was featured in the Health Section of The Daily Mirror in a huge double page spread, this is incredible coverage for the TSW community. It begins with the best introduction: "Despite growing evidence that topical steroid withdrawal is a serious problem causing nerve pain and skin problems worse than the condition they … [Read more...]
Can you get a tattoo if you have eczema?
You may have been told that if you have eczema it is best to avoid getting any kind of tattoo. This isn’t necessarily true, while it is definitely the case that eczema can add a little bit of concern and consideration to those who might want to get a tattoo it doesn’t have to prevent you from ever getting one. If you visit tattoo shops in NYC or other big cities, there will … [Read more...]
Doubt is the worst symptom of Topical Steroid Withdrawal
I am terrified that Topical Steroid Withdrawal is here to stay. That I'm going to be stuck like this, struggling to heal, in pain, with dysfunctional skin. Itching, shedding, flaking, cycling through flares, losing sleep and feeling like I'll never get better and heal. It's like a nightmare that keeps replaying. Not helped by my recent visit to the dermatologist who … [Read more...]
40 Amazing women in Eczema and TSW
Because it's International Women's Day, these are the women I'd like to thank, the women who have taught me, helped me and continue to help the eczema and topical steroid withdrawal community with education, service, blogging etc. Finding women working in a professional capacity in this arena (ie. dermatologists, doctors, scientists etc. was tough, it seems to be a highly … [Read more...]
Allergen and pollen free artificial plants for your home
If you have a pollen allergy or even a fragrance allergy, having plants in the home can be problematic, causing wheezing, shortness of breath and other allergy symptoms. But there is a solution with silk artificial plants and flowers. Firstly I would like to thank Faux La Fleur for gifting me a potted rosemary plant and hydrangea bouquet to try at home. They're absolutely … [Read more...]
Top 7 books for eczema and Topical Steroid Withdrawal
I've found reading one of the things that's really got me through topical steroid withdrawal (TSW). I can get lost in books and love learning about new things too. The eczema and TSW community has so many amazing creative souls, so here, in no particular order, are my top seven books for people with eczema and topical steroid withdrawal. Curing my Incurable Eczema by Cara … [Read more...]
10 reasons to wear a MedicAlert bracelet for anaphylaxis
I've had a MedicAlert bracelet or necklace now for over 20 years and I'd honestly never leave home without it now. It's become part of my getting ready routine, to put on the band or bracelet and I have a few now to choose from. What surprises me though is how few people with anaphylaxis actually wear a medical band. There are other brands on the market, but none quite like … [Read more...]
20 reasons to get a Harvey water softener for eczema
I have had a water softener now for just over three months, it was installed back in November last year so I thought it was about time I shared how I was getting on. How is my skin? is it helping? What do I love most about my water softener? Before we go any further, I must be up front and tell you I was given this water softener. I hope I can repay this incredible … [Read more...]
My life through Topical Steroid withdrawal – Film review!
This is a short film that portrays what life is really like living with topical steroid withdrawal. It's incredible, outstanding and I recommend everyone should watch this and let it be a warning not to use them. This short film has caught me unawares. I knew it was good because I'd heard the buzz online and spoken to friends who had seen it but I wasn't ready to watch it. I … [Read more...]
Gaslit by my dermatologist for the last time
Today I went to visit my dermatologist for a skin check-up and he gaslit me from the minute I walked in to the moment I left. He refuses to accept that topical steroid withdrawal even exists, despite it being recognise by the MHRA and basically ignored everything I said, dismissed all my concerns and views, interrupted me and talked over me... What is gaslighting? From … [Read more...]
Learning to fight for what I need
Really proud of this article that I wrote for the fantastic Happiful magazine. "Learning to fight for what I need." is my story, from intensive care, panic attacks and serious anxiety about living with the threat of anaphylaxis and potentially losing my life, to finding the mental health help and therapy that I needed. I hope you can read the article here from the … [Read more...]
Sponsoring and judging at the Free From Food Awards
If you know me at all you'll know that I've been involved with judging at these awards now for over ten years and bloody love it. This year I got involved with judging a number of categories. So here you go, with a few little highlights of the things I loved best and will be rushing out to buy! The hot allergy gossip So that's a wrap really. What I learnt … [Read more...]
10 Spring Allergy Tips For Seniors
Soon the sun will be out, the flowers will bloom, and the world around us will gradually come back to life. Spring is almost upon us – which means the allergens will be too. Spring is one of the most beautiful times of the year and a favourite season for many people... everyone except people plagued by seasonal allergies, that is. Allergies can make things particularly … [Read more...]
Buteyko breathing reduces need for asthma inhaler
I have been so blown away by the incredible power of Buteyko Breathing that I just have to keep sharing about it. Since cutting out topical steroids and then stopping my asthma medication (initially by mistake) this breathing technique has enabled me to ditch the inhalers. "It works just like my blue inhaler, arguably even better."Ruth Holroyd on Buteyko breathing for … [Read more...]
Allergy mistakes – near miss reporting
Jacqui McPeake of Jacs Ltd and Caroline Benjamin of Food Allergy Aware have collaborated as Hospitality Allergen Support UK to highlight Near Miss Reporting of potential poor allergen management, as a potential RISK for a more serious incident in the future within hospitality. Helping prevent anaphylactic reactions They believe … [Read more...]
Protopic damages in the same way as topical steroids
This is Dominika's Protopic Withdrawal story. She became addicted first to Protopic, a topical immunosuppressant ointment. She had previously never used topical steroids. Her skin showed all the symptoms of TSW to Protopic but sadly doctors did not listen to her concerns and she has had a terrible time - going on to use Topical Steroids, as advised by her doctor, in an effort … [Read more...]
The ‘Trip Advisor’ for people with allergies
Ever wanted to find somewhere safe to eat and had to spend ages searching the internet, contacting restaurants and searching for an allergen menu? If you have allergies or coeliac disease, this new website, Allergy Companions is a must follow. "Allergy Companions is the Trip Advisor of the allergy world."Ruth at whatallergy.com It has hundreds of reviews of restaurants, … [Read more...]
The Potting Shed, allergen safe 10/10
Today I revisited The Potting Shed, a wonderful little cafe which is at a garden centre in Jersey Park, St Albans. I'd just RUN a ParkRun (Jersey Farm) for the first time since before lockdown (GO ME!) with my friends Graham and Dani and had forgotten how brilliant they were with allergen catering. Why I recommend The Potting Shed They just get it, they understand … [Read more...]
30 ways to stay cool for itchy skin
Staying cool is something I've been struggling with for some time now. I think partly because I'm now menopausal but also due to going through Topical Steroid Withdrawal. As the skin heals from deep inside the nerves get confused and send the wrong message sometimes. It's all learning to sweat normally, regulate temperature and become function again but there are ways to combat … [Read more...]
How running is healing my skin from TSW
Why do human beings need adventure? Why do we crave new experiences? Why do I push my boundaries and say yes to scary things? Why do I run? Running is hard! It's a challenge. It can feel like you're just really bad at it but it can also make you feel amazing and it's given me so much. This blog is inspired by fellow Chiltern Harrier Rik's blog about why he runs. Read Why … [Read more...]
Getting the most out of your dermatology appointment
Here are my 10 tips for getting the most out of your dermatology appointment, because I've been there. I've left crying, feeling angry, misunderstood and worthless. I want you to get the most out of your appointments, and over the years I've perfected the art. I think my derm is actually a little bit scared of me now, ever since at my last appointment I gave him a copy of my … [Read more...]
10 tips for getting therapy for fear of anaphylaxis
If you've ever had an anaphylactic reaction or seen your loved one go through it, you'll know how utterly terrifying it is and how helpless you feel. Living with life threatening allergies can be tough for everyone, including you and those around you. It was a very dark time for me, after a very serious anaphylactic reaction that left me unconscious and reeling with fear … [Read more...]
Locanda Locatelli meal out with allergies 9.5-10/10
I had the amazing good fortune to be invited to Locanda Locatelli by my friend Lilija, who has created the most amazing website for people with allergies, a bit like Trip Advisor for allergic people. Check out Allergy Companions if you haven't already, it's amazing and now has my 5 Star review for Locanda Locatelli on it. The reason I've always wanted to go here is because … [Read more...]
20 tips on how to be an allergy advocate
I've been advocating, sharing, fundraising and talking about allergies, anaphylaxis and asthma now for years, long before I started this blog, so I thought I'd write about how you can advocate, whether you have allergies yourself or not. Allergy community - You don't have to be a blogger, speaker or sharing everything on social media to be an advocate. Allergy … [Read more...]
Skin on Fire – TSW documentary reviewed
Skin on Fire is a documentary short film about Topical Steroid Addiction (TSA) and Topical Steroid Withdrawal Syndrome (TSWS). Through the heartbreaking, inspiring stories of diverse individuals who have suffered from TSWS, the film shows their suffering is undoubtedly from a legitimate condition, and the respected medical experts who weigh in offer viewers a better … [Read more...]
The system is broken, but change is coming
I'm feeling a bit broken today too. A day of listening and watching stuff about skin all day has been exhausting. This Morning shared advice that topical steroids very effective” they are & that they are not responsible for “causing any addictions.” That makes me sad. I listened to a podcast that really upset me. Parliamentary live was disappointing to hear nothing much … [Read more...]
Anxiety and post traumatic stress in adults with and without food allergy
Do you experience anxiety and post traumatic stress disorder as a result of your life threatening allergies, anaphylaxis and past allergic reactions? It can be really debilitating trying to cope with something that could be catastrophic if you or someone else makes a mistake. Living on high alert is wearing, exhausting and can cause real anxiety problems. I know I'm not the … [Read more...]
My Protopic usage, tapering and withdrawal
We hear a lot about topical steroid withdrawal, but little about Protopic withdrawal so there is hardly any research existing about what happens if a person decides to stop using Protopic. This is my analysis of my own usage and withdrawal from Protopic so far... and counting... I can't even prove that the problems I'm having with excessive burning, inflammation, crusting … [Read more...]
Top 25 Eczema blogs
Today I received some wonderful news that my humble little blog has made it into the Top 25 Eczema blogs in the world! Whoop Whoop! Another excuse to celebrate as it's also my 3 year TSW anniversary today. The best Eczema blogs are chosen from thousands of blogs on the web ranked by traffic, social media followers, domain authority & freshness. What Allergy … [Read more...]
Spoonie life – living with a chronic condition
I'd heard of this term before and knew it was something to do with being ill but never really understood what it meant. I'm not sure what prompted to me to google it the other night, but it's actually a really cool analogy that helps the healthy and well understand what others who are struggling with their health are having to contend with on a day to day … [Read more...]
Nickel Allergy, a More Common Allergy Than Expected
Nickel allergy is an allergic reaction that’s characterised by red and itchy skin with rashes or bumps. It is caused by contact with objects that release nickel into the skin. An allergic reaction to nickel could also be triggered by consuming food items that contain nickel. How Common Is Nickel Allergy? Contrary to what most people believe, nickel allergy is extremely … [Read more...]
Eczema treatment pathway in the UK
What are the current treatment pathways for adults with eczema? You might be surprised to know that there are actually no NICE guidelines for adults with eczema, so it's no surprise doctors and dermatologist simply follow the protocols, that have not changed for far too long. We all know are how outdated the current guidance can be and we need change. What is the future … [Read more...]
A dermatologists review of The Shape of Skin, eczema poetry
Thank you to Dr Amanda Penny who works as Cosmetic Doctor at PHI Clinic in Twickenham, Harley St, Maidenhead, a non surgical cosmetic clinic, for this truly wonderful review. This is why I write. I recently came across the poem ‘You are golden’ by Ruth Holroyd of Whatallergy It really resonated with me. On a daily basis I see how my patients, with or without … [Read more...]
Frio Cooling wallets – for ice packs – reviewed
Yes I know it's winter, but some us of live in a perpetual heat wave! I am really struggling to regulate my temperature these days, which could be a symptom of going through Topical Steroid Withdrawal, as the skin heals, it has to learn again how to sweat and detect the external temperature and it seems to often over heat. It could also be the menopause... more coming on that … [Read more...]
My favourite free from soup and bowl meals
This is a really hard one for me as it's a real struggle to find good, free from and healthy soup and bowl meals. I love to make my own but it's not always possible due to time constraints and energy levels. So for those days when you want a warming soup and want to just open a can or a pouch, here's my top allergen free options. It's definitely a challenge to find … [Read more...]
Anaphylaxis – The Essential Guide – new look
Many of you will hopefully have already read my Anaphylaxis guide, previously called The Reluctant Allergy Expert - How to kill the fear that anaphylaxis might kill you. Well it's had a make-over for 2022. We've rebranded so it now has a new title, a new cover and brand new cover image. I hope you like it as much as I do. Now called Anaphylaxis: The Essential Guide: An … [Read more...]
Self image, reflections, mirrors, facial eczema and TSW
I've been thinking about my dual fear of mirrors and obsession with my magnifying mirror for a while now. I absolutely hate seeing my reflection in mirrors and photos, after a lifetime of seeing eczema, red and sore skin in them. However I now have an obsession with over analysing the poor state of the skin on my face with a magnifying mirror to assess the damage daily. The two … [Read more...]
Focus on the Positives – the gift of allergies and eczema
Have you written any New Year's resolutions yet this year? i.e. Get cured of allergies, eradicate eczema, heal from topical steroid withdrawal, eat out more without fear, world peace, get fit, write that book... Do you struggle to keep to them? Why not explore the idea of continually viewing life as a chance to be thankful for what you already have. It doesn't have to … [Read more...]
Why New Year’s Resolutions are bollox
And why I'm not writing any for 2022. It's that time of year when we reflect on what we have achieved and what we want to do in the coming year. We write lists of all the things we want to change for the better and I do love a list. But why is there all this focus on the new year being the time to finally become a New You! What if just being me is OK. So this year I am … [Read more...]
Happy Christmas and 2021 in review
Just really quick thank you to each and everyone one of you who read this blog, comment regularly and support me by coming over to read my wafflings. It can feel lonely blogging but I can see from the stats that you guys are reading more and more and coming back and also new readers are finding this blog. So thank you. I've been busy beavering away to bring you … [Read more...]
I had the Pfizer vaccine and no anaphylaxis
Just a really quick blog post because I've seen the news that people who are at risk of anaphylaxis are being turned away from getting the booster vaccine and also are too scared to risk getting it anyway due to previous fears of anaphylactic reactions. I've just had mine and here's my story, explaining why and how for me it was completely safe. A Crisis in the allergic … [Read more...]
Do Covid face masks make your eczema worse?
If you have eczema, topical steroid withdrawal, asthma, or any other condition that may hinder the wearing of masks or make it uncomfortable, cause anxiety or exacerbate symptoms, here's some observations, tips and advice. If you really do not want to wear a face mask there are many reasons that you may be exempt. To download and print an exemption card visit the … [Read more...]
Topical Steroid Withdrawal and eczema of the genitals
Eczema or TSW of the genitals is a delicate subject that affects more people going through topical steroid withdrawal, eczema and sensitive skin than you may realise. It is particularly a problem for women due to the anatomical make up and delicate balance inside the vagina, but can also affect men's genitals too. What on earth do you do when you get eczema, oozing, … [Read more...]
I’m sponsoring the Free From Food Awards 2022
This is a very proud moment for me, I'm beyond excited to announce that I am sponsoring the Free From Food Awards 2022 for the newly created Soup and Bowl meals category. I am a huge soup and bowl meal lover. Most of the food I make at home is soup or bowl related, quick, healthy and easy, but finding safe alternatives for this when eating out, on the go, or shopping is not … [Read more...]
Topical Steroids harm us, not heal us
We expect our doctors and the expert dermatologists who treat us will help heal us, not harm us. It's not too much to ask is it? I think we all expect that basic truth. Doctors should all have one main aim, to help patients get better. You've no doubt heard the term 'Bedside Manner', referring to a doctor's ability to find compassion, listen and ensure the patient feels … [Read more...]
Wireless, comfy bras for sensitive, eczema and TSW skin
I've never liked bras much, they cost a lot of money and most of us just want to take them off the minute we get home. Having a sore, painful skin condition adds an extra complication to this every day clothing item. Have you ever wished your bra was softer, more comfortable and less irritating? I've toyed with the idea of ditching the bra and just burning them all but as … [Read more...]
The first natural supplement for skin
I'm really excited about this new skin supplement brand called Pellamex, the world’s first supplement created for eczema and dry skin. I'm lucky to have been sent a month's supply to try and today I had the first gel. The story behind Pellamex The first of its kind in the global market, Pellamex has been formulated by leading skin biologist, Dr Neil Gibbs … [Read more...]
Can a water softener help eczema?
I’ve often wondered whether investing in a water softener at home could help my skin. Living in a very hard water area, my skin has always felt tight, stiff and dry after bathing and the difference when staying in soft water areas was always markedly better.I also bathed in lake Windermere a few years ago and that natural pure water felt amazing against my skin too and didn’t … [Read more...]
‘The metal allergy guide’ 5 star book review
If you're allergic to nickel then the chances are you'll know the basics. If you've had a diagnosis after testing at an allergy clinic you probably got the one page handout that I received, which was helpful but by no means expansive. There are a lot of places nickel can be found that you would not expect it to be. Reading this book, The Metal Allergy Guide, by Alex … [Read more...]
Working with a chronic illness
Working with a chronic illness is something I have first hand experience of, having navigated full time employment with severe allergies, anaphylaxis and severe eczema and it's a hard one to write about. Because it's not easy. I've had some ups and downs, some really good experiences and some really bad ones. But I do hope that as a nation we are becoming more aware of … [Read more...]
Being a twice published author!
Happy National Author’s Day! A great day to celebrate my writing achievements. I am so proud to be able to call myself an author, a writer and a poet. This short video tells the story of how I became one, fulfilling my dream to be a real author! I've always loved reading and wrote a daily diary from the age of about 12 until my 20s. I still write and journal today but … [Read more...]
Shortlisted in UK’s Mental Health and wellbeing Awards
I'm really excited to be shortlisted in The UK’s Mental Health and Wellbeing Awards, for an award in the category ofInspirational Mental Health Story (lived experience). It's organised by The Root of it and The Mental Health Tick and I'm so excited to be attending an awards ceremony on Zoom later this month. Getting awards like this makes blogging, campaigning and raising … [Read more...]
Natasha’s Law will help save lives
"From October 2021, Natasha's Law will require food businesses to provide full ingredient lists and allergen labelling on foods pre-packaged for direct sale on the premises. The legislation is being introduced to protect allergy sufferers and give them confidence in the food they buy." I have been waiting for this day and I'm so proud of what the Ednan-Laperous family have … [Read more...]
My life with anaphylaxis in chat magazine
I just had to share this brilliant article which was featured this week in Chat Magazine, with the fantastic headline of "Snogging me comes with a health warning!". That made me laugh so much, possibly the heading for my dating profile? This article details my allergy journey, from my first even anaphylactic reaction, diagnosis with a nut allergy, right up to my last … [Read more...]
MHRA recognise Topical steroid withdrawal
This has been a long, long time coming but finally, all of us who reported our Topical Steroid Withdrawal (TSW) through the Yellow Card scheme can feel some relief that TSW is finally being taken seriously. A press release was released today, 15th September, during National Eczema Awareness Week to finally recognise that TSW is a thing! MHRA advises clinicians to be … [Read more...]
Win Westlab Dead Sea Salt for eczema skin
Because it's National Eczema Awareness Week from the 13th to the 19th September, the amazing people at Westlab are giving away 500 packs of Dead sea salts which are great for anyone with dry, sensitive or eczema skin. All you need to do to be in with a chance of winning one is to join their mailing list during National Awareness Week, which runs from the 13th 19th … [Read more...]
Natural treatments for allergic asthma
I've had allergic asthma all my life and used both reliever and preventative inhalers regularly for YEARS. This blog is about my journey to living with asthma naturally and no longer using any asthma medication. I've always worried about this continued use of steroids for asthma and whether they were bad for me, causing side effects etc. Naturally when I began topical … [Read more...]
Why I love Balmonds eczema skincare
And why I'm proud to be a Balmonds Ambassador. I've been an Ambassador for Balmonds products now for many years and first discovered the company whilst speaking at the Allergy Show. Someone from the company had been watching my talk and came over to gift me a free jar and I've been a huge fan ever since. That very first product was their Skin Salvation emollient and that … [Read more...]
Allergies, asthma and eczema protect you from Covid-19
I knew it was sexy to have eczema, allergies and asthma. I knew it was my superpower to have an immune system that was on hyper lookout. Being a superhero can be life threatening in certain circumstances, like coming into contact with an allergen, but it could be protective in other situations, like the Covid virus! Check out this article from The School of Medicine and … [Read more...]
10 tips for caring for chronic eczema or topical steroid withdrawal
I know how hard it can be watching someone suffer with a condition that you don't have first hand experience of yourself. It's difficult to know what to say or how to help. And it can be heart-breaking watching them struggle, knowing they are in pain and you feel powerless to help. Here is my advice of what was really helpful for me during my Topical Steroid Withdrawal worst … [Read more...]
30 Amazing women in allergy
To mark International Women's Day, I thought I'd give a shout out to just some of the amazing women in the allergy world. I left it late to research this so I hope I've not missed anyone. If I have, let me know as I want to keep this list updated. It is an ongoing project to keep this list up to date! Here they are, in no particular order: I know there are so … [Read more...]
Food, mood and symptoms diary for allergies and eczema
You may be thinking that some foods could be affecting your skin and/or gut but it can be complicated and lead to delayed reactions, even a few days after eating. Consider how complex and varied our diets are and how many different ingredients you consume each day and it's not an easy task to pinpoint any one food as the culprit. What is a food, mood and symptoms … [Read more...]
Are you angry and anxious about your allergies?
First of all, you are not alone. The first thing you need to do, if you have a diagnosis for a serious life threatening allergy is to arm yourself with all the information you can. Get the best help, get tests done, see a specialist. Easier said than done I know, but don't give up, if you are not happy with the advice you've been given keep on searching. Find out exactly … [Read more...]
Hay fever and oral allergy syndrome explained
Hay fever is becoming more and more common with 18 million Americans reporting they have symptoms, according to the Centre for Disease Control (CDC). Over 20% of the UK population, some 10 million people are diagnosed with hay fever and the number is growing - this statistic from the NHS from 2019 so it's likely much higher now. People who have never previously experienced any … [Read more...]